In November 2008, the team were contacted by the parents of a terminally ill baby who was hospitalised some considerable distance from her rural home. The child remained in hospital for a number of months, despite being certified fit for discharge home by the treating paediatricians. This was because the HSE adopted the position that the baby's needs could not be met at home.
On the parents instructions, we negotiated vigorously with the HSE on the child's behalf for the implementation of a home care nursing & support package. These negotiations ultimately culminated in the child being brought home, safely in time for Christmas 2008.
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